CCSN Powerpoint Template Empowering Through Education.pptx

About the Webinar: Michelle Colero, Executive Director of Bladder Cancer Canada, will cover the essentials of bladder cancer facts and symptoms while also outlining the support and educational resources provided by Bladder Cancer Canada for those dealing with a diagnosis. Additionally, she’ll share ways individuals can contribute to raising awareness and supporting our community.

1. Empowering Through Education: Bladder Cancer Canada Presented by Michelle Colero, Bladder Cancer Canada Executive Director

2. OUR MISSION Support and educate patients Increase awareness Fund and promote research Bladder Cancer Canada is the first and only national and patient-focused bladder cancer organization

3. OUR VISION To create a world where bladder cancer is just a memory

4. David Guttman & Jack Moon BCC Co-Founders (2009) A Brief History of BCC

5. WHO ARE WE? National Board of Directors 400+ Volunteers Michelle Colero Executive Director Emmalene Rae Executive Assistant Cassandra Schooley Communications Specialist Shasa Boshoff National Fundraising Manager Theresa Blondin National Volunteer & Program Manager & 10,000 e-newsletter subscribers Kevin Christopher-George IT Generalist in Finance and Administration Farihah Islam Quebec Program Coordinator Oliver Sutherns Web Developer

6. WHO ARE WE? Medical Advisory Board

7. BLADDER CANCER FACTS

8. BLADDER CANCER INFORMATION Symptoms: Blood in urine , need to urinate frequently, trouble urinating, pain or burning when urinating, OR back, pelvic or groin pain Types of Bladder Cancer: Muscle Invasive, Non-Muscle Invasive or Metastatic Diversion Types after a Radical Cystectomy: Ileal Conduit, Neobladder, Indiana Pouch Diagnosis: Urine Cytology, Cystoscopy, Scans, Ultrasound or Transurethral Resection of Bladder Tumour ( TURBT)

9. RISK FACTORS

10. PREVENTION? Currently, there is no way to prevent a recurrence. Take steps to stay healthy: eat plenty of fruits, veggies, whole grains, and modest portions of lean meat.  If you smoke, stop.  Limit alcohol consumption Daily exercise and regular checkups will also support your health and give you peace of mind.

11. OUR PROGRAMS & SERVICES

12. SUPPORT PROGRAMS 1. One2One Peer Support 2. Support Groups 3. Online Discussion Forum

13. EDUCATIONAL RESOURCES WEBINARS/SEMINARS Informative sessions for patients featuring members of our medical advisory board & other medical professionals PATIENT GUIDEBOOKS Non-muscle invasive bladder cancer (NMIBC) Bladder preservation strategies for muscle-invasive bladder cancer (MIBC) Radical cystectomy (RC) Metastatic Bladder Cancer Upper Tract Urothelial Carcinoma (UTUC) Caregivers DOCTOR RESOURCES Tear sheets Brochures Awareness Posters

14. BLADDERCANCERCANADA.ORG BCC HELPDESK Our website is fully bilingual includes information on diagnosis, treatment, staging and grading, clinical trials, "Tools, Tips & Insights" and more. Connect with Bladder Cancer Canada via phone or email for helpful resources and information, access to support programs, and guidance to find the answers to your questions.

15. AWARENESS Volunteer team Billboards, transit shelters, doctors’ offices TV commercials Social Media Campaigns Bladder Cancer Awareness Month

16. ADVOCACY Canadian voice for bladder cancer patients… Access to new and effective treatments Ensure supply of critical drugs Right to a second opinion/referral to specialist Earlier diagnosis/early diagnostic screening The need for more research funding

17. We fund research projects which pursue the diagnosis, treatment and elimination of bladder cancer Amount funded by BCC – 3.1 million to date Co-funding research projects with: Canadian Urology Association Canadian Uro-Oncology Group Annually BCC funds up to 3 grants – total of $200,000 per year 2 New Initiatives: Canadian Bladder Cancer Information System (CBCIS) Canada Bladder Cancer Research Network (CBCRN) RESEARCH

18. THE FUTURE The number of new cancer cases in Canada is expected to increase and bladder cancer is no exception. To date we have raised $3.1 million for bladder cancer research to improve medical outcomes. To provide support to the increasing number of people who will be facing bladder cancer, we need to raise an additional $1 million by year end. As Bladder Cancer Canada looks to the future, we will continue our mission in the hope that one day, bladder cancer is just a memory.

19. HOW CAN YOU HELP? Get involved in one of our events: CANADA WALKS FOR BLADDER CANCER BLADDER CANCER SUCKS Or plan your own! Volunteer with our organization. Donate or become a monthly donor.

20. THANK YOU! Any questions? Contact Information Michelle Colero [email protected]

21. Canadian Cancer Survivor Network Contact Info 1750 Courtwood Crescent, Suite 210 Ottawa, ON K2C 2B5 Telephone / Téléphone : 613-898-1871 E-mail: [email protected] or [email protected] Website: www.survivornet.ca Twitter: @ survivornetca Facebook: www.facebook.com/CanadianSurvivorNet Instagram: @ survivornet_ca   Pinterest: http://pinterest.com/survivornetwork/