LNDS-Launch-DataSummitLuxembourg2023.pdf

LNDS data summit

2. Välkommen
Willkommen
Bem-vindo
Benvenuto
BienvenidosBienvenue
Tervetuloa
Wëllkomm
Ласкаво просимо
VítejWelcome

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LNDS Inaugural Launch Event
Agenda
Introduc)on & welcome to the official inaugura)on of LNDS
Opening Speech: StéphanieOber)n, Minister for Research and Higher Educa)on -Minister for Digitalisa)on
LNDS: vision, mission, purpose and response to government’s expecta)ons
What do we do and how do we work -a look into the LNDS service porKolio, and data projects for impact
Keynote speech: EU digital health and data ini)a)ves, by SailaRinne, DG-CONNECT
Concluding words

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Event team
Hosts of the day
CEO
Bert
Verdonck
Head of Technology
Christophe
Trefois
Head of
Communications & PR
Catharina
Marschan
Head of Service
Wei Gu
Fellow ELSI
Regina
Becker
Head of People
Matthieu
Paret
Office Manager
Marie-Laure
Glowacki

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Event team
Hosts of the dayMaster of ceremonies
Bert Verdonck
Master of ceremonies
Christophe Trefois
Master of ceremonies
Catharina Marschan
Master of ceremonies
Wei Gu
Master of ceremonies
Regina Becker
Master of ceremonies
Matthieu Paret
Master of ceremonies
Marie-Laure Glowacki

7. Opening Speech
StéphanieObertin
Minister for Research and Higher Education
Minister for Digitalisation

8. Let’s hear more about what is LNDS!

9. Let’s have a look at our people & our
values…

10. LNDS is ready to serve!
Our new website: www.lnds.lu

12. Let’s look at the expecations of the
LNDS Board of Directors

13. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
LNDS Values
We use a human-centric approach and keep the human in control
TrustableThrivingTransparent

14. Alook at our mission andhow we work

15. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
How we support your work
Create value throughout the data journey end-to-end
Data Collection
Data Preparation
Data Discovery
Data Access
Data Analysis
Data Documentation

16. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
How we support your work
With an integral approach
Tools
Services
Capabili/es

17. Let’s take a look at our service portfolio

18. 12/8/2318 ©LNDS | www.lnds.lu 12/8/2318 ©LNDS | www.lnds.lu
LNDS service portfolio
Design and build a service portfolio to deliver value
Infra and
ToolingComplianceData
Stewardship
Content and
Quality
Community
Service

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LNDS service portfolio
Design and build a service portfolio to deliver value
Infra and
ToolingComplianceData
Stewardship
Content and
Quality
Community
Service
Data Cataloguing
Data Access Request
and Review

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LNDS service portfolio
Design and build a service portfolio to deliver value
Infra and
ToolingComplianceData
Stewardship
Content and
Quality
Community
Service
Secure Processing
Environment
Data Protec:on
Training

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LNDS service portfolio
Design and build a service portfolio to deliver value
Infra and
ToolingComplianceData
Stewardship
Content and
Quality
Community
Service
Data Extrac/on,
Enrichment and Merging
Iden/fier and Pseudonym
Management
Data Quality and Cura/on
Synthe/c Data Factory

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LNDS service portfolio
Design and build a service portfolio to deliver value
Infra and
ToolingComplianceData
Stewardship
Content and
Quality
Community
Service
ELSI and Data Governance
Consul/ng
Data Project Consul/ng
and Onboarding
Data Management and
Stewardship Support
Data Management
Na/onal Community of
Prac/ce
GDPR Working Group

23. Let’s look into tooling & infrastructure

24. CHECK WITH
CHRISTOPHE

25. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
Empowering Data Re-Utilization:
Tools for accessing public sector data
Na#onal data catalogue
Data Act, Art 33, Nov 27 2023
ISO 27001 journey from
the start
Icons: fla*con.com

26. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
Empowering Data Re-Utilization:
Tools for accessing public sector data
Data access
request management
ISO 27001 journey from
the start
Na/onal data catalogue
Icons: fla*con.com

27. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
Empowering Data Re-Utilization:
Tools for accessing public sector data
Data access
request managementSecure processing environment
ISO 27001 journey from
the start
Na/onal data catalogue
Icons: fla*con.com

28. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
Empowering Data Re-Utilization:
Integrating existing platforms
LNDS
IGSS
Icons: fla*con.com

29. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
Connecting to Europe
LNDS –part of ELIXIR Luxembourg
LNDSLCSB
Deeper in bioinforma-cs
Wider across domains
LCSB
LNDS

30. Let’s look into how we do ELSI

31. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu

32. “Human dignity is inviolable. It must be
respected and protected.”
Charter of Human Rights of the EU –Article 1

33. “Human dignity is inviolable. It must be
respected and protected.”
Charter of Human Rights of the EU –Article 1

34. “Human dignity is inviolable. It must be
respected and protected.”
Charter of Human Rights of the EU –Article 1

35. “Human dignity is inviolable. It must be
respected and protected.”
Charter of Human Rights of the EU –Article 1

36. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
Where is the digital society heading?

37. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
Where is the digital society heading?
Will we go towards a fully transparent society without any privacy?

38. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
Where is the digital society heading?
Will we go towards a fully transparent society without any privacy?
NO!

39. “Human dignity is inviolable. It must be
respected and protected.”
Charter of Fundamental Rights of the European Union –
Article 1
© LNDS | www.lnds.lu

40. “Human dignity is inviolable. It must be
respected and protected.”
Charter of Fundamental Rights of the European Union
Article 1
“Everyone has the right to respect for his or
her private and family life, home and
communications.”
Charter of Fundamental Rights of the European Union
Article 7
© LNDS | www.lnds.lu

41. “Human dignity is inviolable. It must be
respected and protected.”
Charter of Fundamental Rights of the European Union
Article 1
“Everyone has the right to respect for his or
her private and family life, home and
communications.”
Charter of Fundamental Rights of the European Union
Article 7
“Everyone has the right to the protection of
personal data concerning him or her.”
Charter of Fundamental Rights of the European Union
Article 8
© LNDS | www.lnds.lu© LNDS | www.lnds.lu

42. So how can we pursue
secondary use of data?
Any limita*on of the rights of the Charter must be
•provided for by law
•respect the essence of those rights
•Necessary
•Propor*onateto the aim pursued and
•genuinely meet objec*ves of general interest
A balancing exercise
Charter of Fundamental Rights
Ar5cle 52
© LNDS | www.lnds.lu

43. So how can we pursue
secondary use of data?
The controller is allowed to further process
personal data
•Based on Union or na*onal law
•As a necessary and propor*onate measure
•For important objec*ves of general public
interest
A balancing exercise
General Data Protec5on Regula5on
Recital 50
© LNDS | www.lnds.lu

44. So how can we pursue
secondary use of data?
The protec*on of the rights and freedoms of
natural persons with regard to the processing of
their data requires appropriate
•Technical and
•Organisa*onal measures
A balancing exercise
General Data Protec5on Regula5on
Recital 37
© LNDS | www.lnds.lu

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What can LNDS do?
Support the legislator
for a data governance
that reflects the
principles of the
Charter and the GDPR
© LNDS | www.lnds.lu

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What can LNDS do?
Support the legislator
for a data governance
that reflects the
principles of the
Charter and the GDPR
Support a data
protec:on by design and
default implementa:on
of secondary use of
personal data
© LNDS | www.lnds.lu

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What can LNDS do?
Support the legislator
for a data governance
that reflects the
principles of the
Charter and the GDPR
Support a data
protec:on by design and
default implementa:on
of secondary use of
personal data
Provide training for researchers and
data managers for secondary use
© LNDS | www.lnds.lu

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What can LNDS do?
Support the legislator
for a data governance
that reflects the
principles of the
Charter and the GDPR
Support a data
protec:on by design and
default implementa:on
of secondary use of
personal data
Provide training for researchers and
data managers for secondary use
Facilitate exchange between DPOs of
public sector bodies engaged in research
© LNDS | www.lnds.lu

49. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
Where is the digital society heading?

50. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
Where is the digital society heading?
We will go towards a knowledge society that builds on privacy-preserving principles

51. LNDS –now present on data.public.lu

52. Publish

54. Let’s zoom out to what happens in Europe

55. Involvement on European level
Making an impact also on European and international level
© LNDS | www.lnds.lu

56. Keynote Speech:
EU digital health and data initiatives
SailaRinne
Acting Head of Unit “eHealth, wellbeing and ageing”
European Commission / DG CONNECT

57. ©LNDS | www.lnds.lu©LNDS | www.lnds.lu©LNDS | www.lnds.lu
Welcome to our office in Belval

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Put your dataon the map
Come to the drawing board!

59. Thank you for celebrating with us!

63. Data Summit Luxembourg
Agenda
Introduc)on & Welcome to the first edi)on of Data Summit Luxembourg
What services does LNDS provide? -A look into the LNDS service porColio
Data projects for Impact –presenta)ons by 4 data partners
Networking & coffee break
Data projects for Impact –presenta)ons by 3 data partners
Keynote & Roundtable:Data spaces in Europe and their relevance for Luxembourg
Wrap up & outlook for 2024

64. Event team
Hosts of the day
CEO
Bert
Verdonck
Head of Technology
Christophe
Trefois
Head of
Communications & PR
Catharina
Marschan
Head of Service
Wei Gu
Fellow ELSI
Regina
Becker
Head of People
Matthieu
Paret
Office Manager
Marie-Laure
Glowacki

65. Event team
Hosts of the dayMaster of ceremonies
Bert Verdonck
Master of ceremonies
Christophe Trefois
Master of ceremonies
Catharina Marschan
Master of ceremonies
Wei Gu
Master of ceremonies
Regina Becker
Master of ceremonies
Matthieu Paret
Master of ceremonies
Marie-Laure Glowacki

66. How we work

67. Let’s look into the LNDS Service Portfolio

68. 12/8/2368 ©LNDS | www.lnds.lu
LNDS service portfolio
Design and build a service portfolio to deliver value
Infra and
Tooling
Secure Processing
Environment
Trusted Processing and
Analysing Workflows
Data Analysis and
Visualisa=on Tooling
Data Archiving
Compliance
Data Protec=on Training
ELSI and Data
Governance Consul=ng
Data Processing Contract
Support
Data
Stewardship
Data Project Consul=ng
and Onboarding
Data Discovery and
Brokerage
Data Access Condi=on
Standardisa=on
Data Access Request and
Review
Data Management and
Stewardship Support
Content and
Quality
Data Cataloguing
Data Extrac=on,
Enrichment and Merging
Iden=fier and Pseudonym
Management
Data Quality and Cura=on
Synthe=c Data Factory
Data Analysis and
Visualisa=on Support
Data Literacy Training
Community
Service
Data Management
Na=onal Community of
Prac=ce
GDPR Working Group
Priority in 2023

69. ©LNDS | www.lnds.lu
Lisa’s Data Journey
PlanAccessInnovate
Data Project Consul)ng and
Onboarding
Data Cataloguing
Data Access Request Review
Secure Processing Environment
Iden)fier and Pseudonym
Management
Data Extrac)on and Enrichment
Synthe)c Data Factory

70. ©LNDS | www.lnds.lu
Comply
Manage
Lisa’s Data Journey
PlanAccessInnovate
Data Management and
Stewardship Support
Data Quality and Cura)on
Data Management Na)onal
Community of Prac)se
Data Protec)on Training
ELSI and Data Governance
Consul)ng
GDPR Work Group
Community

71. Let’s take a lookat the platforms we use

72. ©LNDS | www.lnds.lu
SecurityPrivacy by designDecision analysis and
resolu)on
Balance between
cost and benefits
Open source by
default for all LNDS
created tools
12/8/23
Strategic Technology Selection

73. ©LNDS | www.lnds.lu
Empowering data re-use of public sector data
Na/onal data catalogue
Data Act, Art.33
Data access
request managementSecure processing environment
ISO 27001 journey from the start
Icons: fla*con.com

74. Luxembourg National Data Catalogue
https://data.lnds.lu

75. ©LNDS | www.lnds.lu
Luxembourg National Data Catalogue

76. Let’s take a look at the third ingredient,
ELSI

77. ©LNDS Data Summit Luxembourg 2023
A little exercise
Information requirements under the GDPR
Is it necessary to inform a ci;zen if his/her data are
transferred from one administra;ve public body to another? ?

78. ©LNDS Data Summit Luxembourg 2023
A little exercise
Information requirements under the GDPR
Is it necessary to inform a ci;zen if his/her data are
transferred from one administra;ve public body to another?
Yes, informa;on according to Art. 13 or 14 GDPR is
necessary unless
A legisla'on provides for the informa'onof which data is
submi5ed to whomfor which purpose
or
A legisla'onderogates from this informa6on obliga'on
[European Court of Jus-ce, Barra and Others]?

79. ©LNDS Data Summit Luxembourg 2023
How we can help…
Data governance of secondary use
Review of legislaEon –
necessity, proporEonality and essence of fundamental rights
Suitable and specific measures for privacy and
support of data managers in data management
Transparency tools

80. ©LNDS Data Summit Luxembourg 2023
A little exercise
Controllership
A public research centre implements a Facebook “Like” buQon
on its News website
Who is controller for the data collec;on through the related
cookies and transmission of these data to Facebook? ?

81. ©LNDS Data Summit Luxembourg 2023
A little exercise
Controllership
A public research centre implements a Facebook “Like” buQon
on its News website.
Who is controller for the data collec;on through the related
cookies and transmission of these data to Facebook?
The research centre and Facebook are joint controllers for the
collec;on and transmission.
The research centre as operator of the website causes the
collec6on and transmission by the Facebook designed cookie
Both par6es have a legi6mate interest in the processing
[European Court of Jus-ce, Fashion ID]?

82. ©LNDS Data Summit Luxembourg 2023
How we can help…
Facilitating discussion between data protection actors in public research
Exchange plaQorm for experiences and best pracEce
Reports on regulatory developments –European Court of
JusEce, European Data ProtecEon Board, new legislaEons
Discussion Forum: quesEons, interesEng findings and
knowledge management

83. ©LNDS Data Summit Luxembourg 2023
How we can help…
Data protection training –an eLearning Tool
ExplanaEon of terms and obligaEons and potenEal
misconcepEons
Examples
Test quesEons

84. ©LNDS Data Summit Luxembourg 2023
A little exercise
Personal data under the GDPR
Is environmental data personal data??

85. ©LNDS Data Summit Luxembourg 2023
A little exercise
Personal data under the GDPR
Is environmental data personal data?
If you don’t know the answer –
how about you look into our training modules? ?

86. ©LNDS Data Summit Luxembourg 2023
A little exercise
Personal data under the GDPR
Is environmental data personal data??

87. SDF RELEASE BUTTONRelease
© LNDS Data Summit Luxembourg 2023
To contribute to the Synthetic Data Factory

89. “navigate to data project request form on the
website”

90. Open for requests
h"ps://howto.lnds.lu

91. Let’s move on to…
Data Projects for Impact!

92. Technical Director,
MyConnec/vity
Julien Larios
Identification of missing very-high-capacity-networks (VHCN)
in Luxembourg

93. Data Cataloguing at the Luxembourg Environment Agency
Anne Majerus
Deputy Director
Isabelle Naegelen
Coordinator of
Environmental Data

94. Data through LNDS
from request to enrichment
Dr. FrançoiseBerthet
Director
Aymeric d’Hérouël
Principal Data Architect

95. Enabling Transparency and Trust inResearch Data of C2DH Projects
TugceKaratas
Research ScienAst
/Data Manager
GhislainSillaume
Project Coordinator
/Research Support

96. Senior Market Intelligence Analyst
Luxinnova/on
MohamedToumi
Enhancing Knowledge in Luxembourg
Innovation Ecosystems

97. Head of Sta)s)cs and Data Strategy Departments
Ministry of Higher Educa)on and Research
Bruno Rodrigues
Crafting a Complete Data Picture for Better Policies
– Labour market outcomes of BTS graduates

98. Head of Labour Market Department
Luxembourg Ins7tute of Socio-Economic Research
ChristinaGathmann
XBorder Project
A linked administrative dataset for the Greater Region of Luxembourg

99. Keynote & Roundtable:
Data spaces in Europe and their relevance for Luxembourg
Federico Milani
DG-CONNECT
Ulrich Ahle
Gaia-X
Bert Verdonck
LNDS

100. Thank you & look forward to seeing you for
Data Summit Luxembourg 2024
11th December 2024, European Convention Center Luxembourg

101. Ask LNDS & Give Feedback
Send email to [email protected]