The Power of Technology and Collaboration in Research - Rheumatology Research Workshop 2024 - Denver, CO

The Power of Technology and Collaboration in Research - Rheumatology Research Workshop 2024 - Denver, CO

1. The Power of Technology and Collaboration in Research Paul Sufka Twin Cities Orthopedics, Eagan, MN

2. Disclosures None

3. Collaborate at this conference Highly suggest using the 𝕏 (formerly Twitter) app or website during this conference Use the hashtag #RRW24 on anything you post related to the conference Post at least once so people can find you In 𝕏, search #RRW24 to find posts related to this conference Connect with people through direct messages

4. Overview Overview of technology in research and collaboration Use of technology for collaboration by The COVID-19 Global Rheumatology Alliance (GRA) Practical use of technology (actionable advice) Future advances, trends, and predictions

5. My Background in Rheumatology and Technology 2008 joined Twitter 2011 started website/blog paulsufka.com 2012-2016 ACR Tweetups 2012-2015 The Rheumatology Podcast 2014-2015 ACR talks on blogging, tech automation and productivity 2015-2020 RheumJC on Twitter 2016-2018 ACR Communications & Marketing Committee 2019-2023 ACR journals social media editor 2020-2023 GRA Technology and Marketing Lead

6. Overview of technology for collaboration in research Direct communications: Email, text messages Team discussions: Slack, Teams Video communications: Zoom, Teams Data sharing: Google Drive, Dropbox, OneDrive Cloud computing: AWS, Azure, Google Cloud Social media: 𝕏, LinkedIn, Facebook, Instagram, TikTok, YouTube, theMednet , Figure1 Mass communications: Mailing lists, Webinars/Live streams, Ads Project management: Trello, Asana, et c

7. Case study: Use of technology by the GRA How we used simple technology to amplify our efforts

8. Tech in the GRA Day 1: Twitter (March 11 th )

9. Twitter replies…

10. Tech in the GRA Day 2: Email (March 12 th ) 5:25am Brisbane time

11. Tech in the GRA Day 3: Slack (March 13 th )

12. Tech in the GRA Slack + Zoom + Email Organized into multiple teams: Registry development team Ethics/IRB team Consent team Case collection form team Pediatric registry team Teams working on systematic reviews Patient board Regional leads

13. Tech in the GRA Slack + Zoom + Email + Google Docs Day 5: IRB Approval!

14. Tech in the GRA Maximizing worldwide reach of the registry Tech: URL: rheum- covid.org Website platform: WordPress Social: @ rheum_covid on Twitter Mailing list: Mailchimp (most important) Also: Branding Collaborating with major rheumatology organizations worldwide Mainstream media Press release

15. Branding GRA quickly formed a recognizable brand: worked with designers from ACR People should be able to figure out your goals on social media

16. Collaborating with hundreds of supporting organizations

17. In the media… (as a tech nerd, it was a lifetime dream to do an interview with Wired Magazine 😬)

18. Even more Marketing Built videos to be posted on YouTube and shared via social media and our site… Multiple translations of our registry

19. Day 13: Launch 3/24/2020 Email to mailing list Press release Posts on social media w/ #Covid4Rheum hashtag

20. March 12, 2020 🚀 March 24 April 1: 100 cases April 20: 600 cases May 15: >1500 cases Oct 2022: >30,000 cases Cases in the GRA registry over time

21. The power of global collaboration: Over 30,000 cases reported

22. Practical use of technology for collaboration Use the simplest, most intuitive tool possible Ensure tools are easily accessible and secure Choose user-friendly tools that enhance collaboration and productivity

23. Practical use of technology for social media Network effect V=k⋅ n 2 (Metcalf’s Law) 𝑉 is the value of the network k is a constant that represents the value per connection n is the number of users in the network Virality Content should be easily shareable to encourage rapid and widespread distribution 1% rule of user-generated content 1% of users create content 9% of users edit, modify, or comment on content 90% of users view content without contributing

24. Direct and group communication tools For broad direct communication to a group, email lists are best Building an email list can be an easy and valuable way to recruit research volunteers and keep them updated.

25. Future directions & predictions Artificial intelligence Virtual/augmented reality Quantum computing

26. Artificial intelligence Machine learning = these are generally complex algorithms Current “AI” = Neural networks Modeled after human brain Training data is weighted by importance and associations with outcomes Requires massive amounts of training data, specialized GPUs Eg : ChatGPT (generative pretrained transformer), Gemini, LLaMA and Claude are primarily NLP (natural language processing) types of AI.

27. Virtual/augmented reality Virtual workspaces/meetings Uses in medical education (surgical procedures) Data visualization Mental health/pain management instagram.com / zuck www.apple.com /apple-vision-pro/

28. Quantum computing Uses qubits (quantum bits) that can represent both 0 and 1 at the same time, instead of classic bits (0 or 1) A system of n qubits allows for 2^n states to be represented at once, which allows for massive parallel processing of data Best explanation for this is how a prism can ”process” all outcomes of the light spectrum instantaneously quantumai.google / quantumcomputer

29. Summary Use 𝕏 and #RRW24 at this and other ACR conferences Many tech tools to collaborate: simple is often best and worked well for the GRA Social media: value comes from network effect; your content should be easily sharable AI is going to be in everything

30. Questions?