Cancer registries in india

The national cancer registry program

1. Cancer Registries in India Dr Pallavi Kalbande MD radiation Oncology

2. Introduction Cancer registration is the process of systematically and continuously collecting information of cancer Cancer-related Information Demographics Medical history Diagnosis and prognosis indicators Treatment patterns

3. Goal Collect cancer information to prevent and control cancer and improve patient care

4. National cancer registry programme National Cancer Registry Programme was launched in 1982 by Indian council of medical research(ICMR) to provide true information on cancer prevalence and incidence

5. Objective To generate authentic data on the magnitude of cancer problem in India To undertake epidemiological investigations and advice control measures Promote human resource development in cancer epidemiology

6. Secondary objectives Strengthening of departments of pathology in medical colleges and other hospitals with personal computers and internet connection Providing orientation/ training in cancer registration and epidemiology to pathologists

7. Types of cancer registry

8. Population based registry The total coverage of population is 3.3% only It covers mainly urban population which is 12.8% and coverage of rural population is 0.06 The population-based registries provide epidemiological data on Crude incidence rates for all ages Age adjusted standardized incidence rates Annual age adjusted incidence rates Incidence rates for all ages

9. Population based registry (Urban) Bhopal

10. Population based registry (Rural)

11. These registries provide information on Common cancers in India Geographical variation of occurrence of cancer Nature of cancers for effective control measures Data on incidence and mortality (also variation in incidence and mortality)

12. • Personal identification (names (in full) and/or unique • Sex • Date of birth or age • Address (usual residence) • Ethnic group (when the population consists of two or more groups) • Most valid basis of diagnosis (enables cases to be registered with a non-histological diagnosis) • Topography (site) of primary cancer • Tumor morphology (histology) Data collection

13. • Date of last contact • Status at last contact (at least dead or alive) • Stage or extent of disease at diagnosis • Initial treatment Tumor behavior (benign, uncertain, in situ or malignant) • Source of information

14. The primary purpose To contribute to patient care by providing readily accessible information on the patients • Data - used for clinical research and for epidemiological purposes • Integral part of the hospital’s cancer programme or health care delivery system Hospital based registry

15. Objectives - Assess Patient Care - Participate in Clinical Research to Evaluate Therapy - Provide an idea of the patterns of cancer in the area -help plan hospital facilities

16. Data collection is done by the individual registries using a standardized common core form The information of patient Identifying and demographic information Details of diagnosis the clinical stage of the disease Broad type of treatment instituted

17. https://ncdirindia.org/All_Reports/Report_2020/default.aspx