What is independent living?
–
7 Drivers for guiding solutions
1
4.5.2015
JUHA KRONQVIST
NORDIC INDEPENDENT LIVING CHALLENGE
Copyright Diagonal Mental Structure Oy. All rights reserved. 2
USERS OF SERVICES AND PEOPLE WHO PROVIDE CARE TO SUPPORT INDEPENDENT LIVING
25 ETHNOGRAPHIC INTERVIEWS
FIVE EXPERT INTERVIEWS
Helsinki
Sylvi
Aili
Ritva
Ritva
Liisa
Anni
Stockholm
Ruth
Eeva
Gunn
Sigge
Victor
Copenhagen
Rigmor
Bjarne
Johanne
Oliver
Oslo
Erna
Ulf
Sverre
Rigmor
Bjørg
Reykjavik
Jóhanna
Þórður
Sigfús
Hallgrímur
Rúnar
Freyja Haraldsdóttir, human rights activist who has been active in
the development of the personal assistance system for disabled
people in Iceland.
Margrét Margeirsdóttir, Social worker and entrepreneur who has
been a leading influence on social and welfare issues in Iceland.
Tuomas Tuure, Kynnys ry. Organization for the basic and human
rights of people with different kind of disabilities.
Petri Helander, Lyhty ry. Organization that arranges housing,
workshops, events and other activities for the people with intellectual
disabilities.
Antti Karisto, Professor of Social Gerontology from the University of
Helsinki. Has run social scientific studies on many aspects of old
age.
Copyright Diagonal Mental Structure Oy. All rights reserved. 3
METHODS FOR PACKAGING THE NEEDS OF THE FRAIL ELDERLY AND DISABLED
Thematic profiles Design drivers Documentary clips
Analysis sessions General framework
Kuva videosta
4
So what does independent
living mean?
5
So what does independent living mean?
3. It means that you are a subject
and retain control over your own life.Keeping your home clean and tidy is a form of retaining control.
Kuva jostain iloa tuottavasta yhteisestä
harrastuksesta datapointtina
2. It means you have the capabilities
to live in a meaningful way.“I do some gardening work almost every day. You know people
who have gardens live longer.”
1. Living independently means that
your life is not institutionalized.
"It’s a mindset, a strong experience. You can actually become
institutionalised in your own home if you don’t have any control
and some people you don’t know just come to your home in
hours you can’t decide and just do things to you.”
Runar, Reykjavik
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Current ways of living do not always
support meaningful independent life
INDEPENDENTINSTITUTIONALIZED
LIFE
ALONE
LIFE WITH
OTHERS
Living in your own home, but feeling
like being under the mercy of
institutions that provide care and help.
“I’m just constantly waiting for them to
come and I never really know who is
coming and at what time.”
Feeling like one is getting by just fine, but
longing for more meaningful social
connections.
“I’ve always lived alone and I’ve been
happy with that, but lately I’ve started
missing company. I could move to a
service home, but I’m not ill enough.”
Living in a setting where one feels
empowered thanks to the social network
around. Current examples in some 60+
housing options and service housing of
the elderly.
“I have my own home and if I want to I
can go and socialize with others, have
lunch in the common area or join the
gardening group. It’s good.”
Living in a hospital, elderly home or
service housing that doesn’t feel like
home due to the rules and restrictions
set by the institution.
“I just sometimes need to get away. I
would want to create my own rules and
systems even though I know it’s difficult.”
Empowerment is
considered a good goal
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Good tools and services empower people to do things by
themselves, but help is also needed
“If possible we don’t do things for the
people, but try to give them an active
role by providing tools for
empowerment.”
-Worker at elderly service center in Reykjavik
“Independency doesn’t have to mean
that you do everything yourself. It’s
about being able to take decisions in
your life. Everyone should be entitled to
that.”
-Freyja, activist for the human rights of disabled
As long as it doesn’t mean
a lack of help when needed
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How to soften the ”down” life
events and enhance the “up”
events?
Age
Energy and health
Age
Energy and health
Typical down events
•Losing a spouse
•Losing an important physical
skill (such as cleaning,
reading, cooking etc.)
•Medical treatments and
recovery times
•Losing friends or family
members
•Losing memory (short term
and more serious problems)
Getting older is traditionally considered as a downward process of
deterioration of energy and health. As the life expectancies have
become longer the pattern of ageing, health and energy are
becoming more diverse with different kinds of ups and downs.
Typical up events
•Finding a new hobby or a
place to spend time
•Learning new skills
•Getting better medication
•Finding a form of care that
improves life quality
•Making new friends
•Travelling abroad
•Falling in love
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7 Drivers for
Independent
Living 1.Give structure but allow
spontaneity
2.Maintain everyday
practices
3.Help in arranging
activities
4.Facilitate finding people
5.Make change less
scary
6.Design for slow and
long use
7.Enable sharing of
clever fixes
1. Give structure but allow
for spontaneity
“I like it when there is structure
and order in that way...when
everything is under control you
can say. If there is not order in
things I don't like it. I want to
avoid that as far as possible.”
“The care workers want me to write
down my plans on the table, but I don’t
use it. I will rather check my plans for
the day from my phone.Then I get it,
okay this is today’s schedule.”
“I am not exactly mobile so
I don’t get around a lot in
this place. At times I sneak
away into town. I know I will
get a no, so I don’t ask.”
1. Give structure but allow
for spontaneity
There should be a careful interplay between order
and breaking free of the constraints. The everyday
routines should be in place and supported. On the
other side there should be room for elevating the
everyday by doing something different.
2. Maintain existing or introduce
new everyday practices
“When I was able to bake I used to
get visitors. Now I don’t want to
invite anybody since I can’t offer
them anything.”
“Look, I have made all these by
hand. Since I can’t make it like that
nowadays I don’t knit anymore.”
2. Maintain existing or introduce
new everyday practices
While getting older one gradually loses abilities that
are related to one’s everyday life. Knitting relates to a
sense of achievement and baking can be related to
social life. Practices and routines are important in
many ways and should be supported or if lost,
replaced with new ones.
3. Help arranging activities
for others
“I mostly send emails and update
the newsfeed on our club webpage.
And recently I bought two
bookshelves at an online auction.”
“I mostly send emails and update
the newsfeed on our club webpage.
And recently I bought two
bookshelves at an online auction.”
She thinks she could benefit from assistance in
arranging events for others. Trips require a lot of
planning and communication, which could be
easier if she could gather all the information in
one place.
3. Help arranging activities
for others
Some seniors act as social hubs by organising
events for their network. They can spend
considerable amounts of time doing it and are a
valuable resource. Helping them coordinate better
builds the whole community.
4. Facilitate finding people
to share duties
Aune has tried to find
people through a
volunteer
organization, but she
feels that suitable
helpers are not easy to
find. Henri only
accepts men, which
automatically makes
things more difficult.
4. Facilitate finding people
to share duties
All of Aune’s time revolves around taking care of
Henri. Part of the problem is Henri’s strict
requirements for people he interacts with. By helping
her find people to share her duties she’d have time
for herself as well.
5. Make change less scary
“The social services wants me to sell
my big home and move to a smaller
place. Tell me, where can I go from
here?”
5. Make change less scary
“I hate technology because it is so
difficult to use. But this safety bracelet
is great. You just push the button for
help.”
5. Make change less scary
Many seniors are struggling with change and would
rather avoid learning new things. Especially
technology can feel strange and most tend to avoid
overly technical solutions. Solutions need to be easy
and presented one small positive step at a time.
6. Design for slow and long
use
“One of the greatest differences
from being handicapped and so-
called normal is the amount of time I
take to do small things, among
which is reading. I take a lot of time
doing it...But I do it a lot. I like it.”
6. Design for slow and long
use
Having a cognitive disability everything takes longer
to do due to concentration and coordination
difficulties. On the other hand, taking time to do
things can give pleasure to the user. Services and
technology should take this in regard.
7. Enable sharing of clever
fixes
When I learned to drive my
joystick-operated car I didn’t
know anyone who would
have experience with it and
could have told me about it.
“Mouse system with
camera and hat is for
gamers, but it works
well for me, too.”
7. Enable sharing of clever
fixes
Many create ingenious solutions to help them in their
everyday, but there are no established ways of
sharing this knowledge with others. Leveraging new
technology and new mentorship models and social
media can enable sharing of the solutions with
others.
37
7 Drivers for
Independent
Living 1.Give structure but allow
spontaneity
2.Maintain everyday
practices
3.Help in arranging
activities
4.Facilitate finding people
5.Make change less
scary
6.Design for slow and
long use
7.Enable sharing of
clever fixes
Juha Kronqvist
Senior Service Designer
+358 41 4660309 [email protected]
www.diagonal.fi
38
Juha Kronqvist
Senior Service Designer
+358 41 4660309 [email protected]
www.diagonal.fi
05-05-15 Nordic Centre for Welfare and Social Issues 1
The Nordic Marked for Welfare
Technology
Senior Advisor Dennis C. Søndergård,
Nordic Centre for Welfare and Social Issues
05-05-15 Nordens
Velfærdscenter
3
Welfare Technology – an
important pillar
• Not simply a project – a key pillar
within ”NWC”
• Apart from CONNECT we also have:
• A Nordic Thinktank
• A Network for dementia and Welfare Technology
• Publictions:
• 2012: Etik of velfærdsteknologi
• 2013: Velfærdsteknologi – Nøglen til arbejdsmarkedet?
• 2014: Economic aspects of Welfare Technology
• 2014: Dementia pamphlet
• 2015: Recommendations on Implementation (Nordic
Thinktank)
• 2015: A stronger Nordic marked for Welfare technology
The Nordic Marked
! Welfare technology a broad umbrella term:
! (Welfare technology assists* or delivers welfare services)
- Traditional assistive technology
- eHealth, mHealth, digitalization
- New assisted living solutions
! Significant differences in marked strength, both on national levels
but also on Nordic level.
! Significant potential due to economic and demographic challenges
The Nordic Marked
! Demographic challenges underlining the marked:
- In the last 20 years the population has grown by 6,5% while the
population over 65 has grown 34,8% (on EU level)
- As an example Denmarks number og people over 65 has passed one
million, and the % over 80 is expected to double by 2040.
- Labour marked is decreasing, dependency ratio is worsening
- Projected cost of healthcare and long term care rising
- UNDERLINING THE COMMEN NEEDS IN THE NORDIC COUNTRIES
- When the individual markeds grow the Nordic marked grow.
Finland,Sweden and Denmark has the most severe demograhic
challenges.
The Nordic Marked
! Marked differences
- Definition of Welfare technology today is very similar among
the five countries, but the starting point differed.
- Motivation for working with welfare technology also differs –
but now less and less.
- Marked differences also reflect culture and organisation
- Examples: Culture: Denmark V Sweden Organisation: Norway
and Iceland V Denmark and Sweden.
CASES:
! Vendlet (DK):
! Advanced assistive technology.
! (A strategy of distributors and brand strength)
! Elsi Floors (FI):
! Sensor technology for assisted living
! (Combination of branch and distributors)
! Bestic (SW):
! Robotic assistive eating device for disabled
! (Distributors)
All Started by exploring, learning, networking.
The Nordic Marked
! SUMMED UP:
! The marked is still fragmented, but steadily growing. The potenital
is significant.
! Similar challenges, similar healthcare organisation and similar
mindset/cultural values translates into common needs.
! The national markeds still developing and there are differences to
consider.
! This has political interest – and a common marked would boost
both supply and demand.
05-05-15 Nordic Centre for Welfare and Social kssues 9
The CONNECT Projekt
• The Problems:
• Too many projects with too little end
product...projektitis
• Too much focus on participating in project and not
enough on embedding knowledge throughout the
organisation
• A continuing re-invention of the wheel due to poor
coorperation and lack of knowledgesharing – nationally
and on a Nordic level – wasting ressources
• A weak common Nordic marked for welfare technology
(national fragmentation)
05-05-15 Nordic Centre for Welfare and Social Issues 10
What!is!CONNECT?!
• An!a0empt!to!create/iden9fy!a!complete!process! on!how!
to!work!with!welfare!technology.!(op9mizing!the!chance!
of!successful!implementa9on)!
• Crea9ng!a!complete!toolkit ,!equipped!with!”Best!
Prac9ce”!tools!for!each!iden9fied!step!in!the!process.!
• BoPom;Up!based!Best!pracHce:!Ten!selected!
municipali9es!create!the!tools,!aided!by!na9onal!
authori9es!and!you!!
• Collec9ng!knowledge!and!experience!on!problems!and!
barriers!and!thus!crea9ng!a!rapport!for!decision!makers.!
05-05-15 Nordic Centre for Welfare and Social Issues 11
•!What!would!this!process!look!like?!
!
Bo0omOUp,!means!it!was!decided!by!the!municipali9es!
!
The!nine!step!process!includes:!
!
Vision!–!Strategy!–!Communica9on!plan!–!Needs!assessment!
–!Technology!Screening!–!Evalua9on!model!–!Procurement!
model!–!implementa9on!model!–!Effect!Monitoring!
05-05-15 Nordic Centre for Welfare and Social Issues 12
•!Who!is!parHcipaHng?!
!
Sweden:!Västerås,!Göteborg,!SKL!and!Myndigheten!for!
Delag9ghet!
Denmark:!Odense,!Aarhus!and!KL!
Norway:!Lindås,!Lister,!KS!and!Helsedirektoratet!
Finland:!Oulu,!South!Karelia!and!THL!
Iceland:!Reykjavik,!Akureyri!and!Ministry!of!Welfare!
!
10!municipali9es!and!7!na9onal!authori9es!
!
!
05-05-15 Nordic Centre for Welfare and Social Issues 13
•!GOALS!/!AMBITIONS?!
!
• A!validated!Nordic!process!and!toolbox!would!make!it!
easier!to!get!startet.!There!are!1200!nordic!municipali9es,!
many!of!which!has!not!yes!started!working!with!wefare!
technology.!
• A!common!framework!–!a!common!process!would!make!
knowledgesharing!easier,!not!only!na9onally,!but!across!
the!Nordic!region.!
• If!the!Nordic!demand!side!use!the!same!framework,!
suppliers!would!have!easier!acces!across!borders!–!as!the!
quesitons!would!be!the!same.!
05-05-15 Nordic Centre for Welfare and Social Issues 14
•!PracHcal!informaHon:!
!
• The!project!is!under!way!–!first!three!steps!will!be!
released!for!input!during!the!1st!quarter!of!2015.!
• Everyone!can!influence!this!bo0omOup!project!
• Project!ends!2016.!
!
• More!informa9on!can!be!found!on!our!website.!
05-05-15 Nordic Centre for Welfare and Social Issues 15
Thank you!
Senior Advisor Dennis C. Søndergård,
Twitter: velfærdsteknologiNVC (@teknologidk)
www.nordicwelfare.org
The Nordic Marked
About Caretaking…
and technology
Bente N. Otto
Unit Manager
District of Ullern
City of Oslo
About caretaking- Nordic welfare system
• From volunteer to public professions
• From low education to bachelor degrees
• Back to need of the volunteer as friends,
family, local society and organisations
Caretaking and technology
Good solutions support the users
independence and managing their own lives,
instead of depending on others.
Skøyen terrasse Omsorg+
Caretaker needs
• High quality care
• Efficiency in care
• Understanding different technology
• Make it simple
www.nordicinnovation.org
The next steps in the competition
ARVID LØKEN, HAUKUR STEFANSSON AND MAGNUS BUER
1
www.nordicinnovation.org 2
www.nordicinnovation.org
Nordic added value
Share best practice
Nordic standards / solutions
One Nordic home market
Nordic brand
Nordic ecosystem for entrep.
www.nordicinnovation.org
Criteria for selection to the Business
Development Stage
Up to 25 ideas will be selected to move on to stage 4. The jury will
evaluate applications based on the following criteria:
Potential outcome in terms of meeting the defined challenge
The strength, composition and motivation of the team
Originality in solution and level of innovation
Nordic qualities in terms of inclusive design, visual design, functionality
and user friendliness
Nordic market potential
4
www.nordicinnovation.org
The jury
Gunn Ovesen , former director of Innovation Norway
Nanna Skriver, Manager of the Center for Caring under the Health and
Care Administration in Copenhagen municipality.
Christian Bason , Chief Executive at Danish Design Centre (DDC).
Onny Eikhaug, Programme leader at the Norwegian Centre for Design and
Architecture.
Arja Peiponen, Service district director in the Helsinki City Department of
Social Services and Health Care.
Eva Frunk Lind, Director of the elderly services administration in the City of
Stockholm.
Johanna Ulfvarson, Programme manager in the Life Science Department,
Health Division at Vinnova.
Christian Lindholm , CEO of Korulab, Co-founder of the Vertical Health
Accelerator.
Thor Thorarinsson , Senior Social Care Advisor in the Department of
Welfare Services, Ministry of Welfare, Iceland
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www.nordicinnovation.org
The business development phase
Will take place during the second half of 2015
A program consisting of: Nordic startup workshop
Tailored mentoring / matching with relevant experts and advisers
National workshops
A second workshop – with pitching for the jury
What we want
Develop the idea further
Connecting with user needs
Prepare for testing and progressing in the competition
6
www.nordicinnovation.org
The basics
• We encourage projects to join forces
• Participants who have been selected for this
matchmaking event can submit an application
for the next phase
• Participants are free to include external project
partners in their projects
7
www.nordicinnovation.org
DEADLINE
• The deadline for submitting proposals for the
next phase of the competition is 27.05.2015
• The results form the jury will be made public in
mid-June
• Details on where and how will be sent to all
participants will be sent out by NI shortly
8
www.nordicinnovation.org
Q & A
This is your opportunity to ask your questions
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www.nordicinnovation.org
Nordic Innovation
Stensberggata 25
NO-0170 Oslo