Project Design on Parkisonism disease.pptx

Project design on parkinsonism in low middle income setting

1. PRESENTATION ON PROJECT DESIGN … Facilitated by : NAWSHABA AKTHER MOHONA-2421243 MD ZAHIDUL HAQUE-2412817 RUKAIYA FARJANA -2412818 1

2. Neighbourhood Parkinsonism Detection & Care (NPDC ): Pioneering a Community-Driven Model for Rural Bangladesh’s Ageing Population 2

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4. Projections for prevalence of Parkinson’s disease and its driving factors in 195 countries and territories to 2050: modelling study of Global Burden of Disease Study 2021 4

5. Background Caregiver burden Families—especially women—bear heavy emotional, financial, and social stress with minimal formal support. Policy vacuum Parkinsonism is absent from national ageing or NCD programs . . Invisibility of the problem Parkinsonism is often misinterpreted as “normal ageing,” leading to underdiagnosis. Healthcare gaps Rural Bangladesh lacks neurologists and diagnostic facilities, and even essential drugs like Levodopa are inconsistently available. By 2050, 1 in 5 Bangladeshis will be elderly, yet Parkinsonism remains a neglected public health challenge. 5

6. Target population 6

7. Specific objectives and outputs To reduce the burden of Parkinsonism among rural elders in Bangladesh by developing a sustainable, community-based model that promotes early detection, improves access to care, supports caregivers, and integrates tele-neurology into rural health systems. Overall Goal 7

8. åctivities Community Mobilization : Use mosques, schools, and village leaders to raise awareness. Health Worker Training : Develop Bangla-language screening tools and training modules. Community Exercise Programs : Group-based mobility and balance training, tailored for Parkinsonism patients. Volunteer Cascade Model : Peer educators spreading health messages and household-level awareness. 8 8

9. Principle Investigator Technical Experts Supporting/ external roles Social Mobilizers Community representative Statistician Physiotherapist Advisory Board International Expertise's Co Investigator Nurologist/Community medicine specialist Implementation team Project Team 9

10. 📅 Frequency: Monthly (Inputs/Outputs); Quarterly (Outcomes); Annual (Impact) 👥 Responsibility: Field Team → M&E Officer → PI & Advisory Board 📂 Data Sources: Facility registers, telemedicine logs, caregiver & patient surveys Monitoring & Evaluation Plan (NPDC) 10

11. Hierarchy of Objectives Indicators Means of Verification Critical Assumptions Goal: Reduce disability and improve quality of life of rural elders with Parkinsonism ↓ Disability scores ↑ E arly diagnosis ↑ C aregiver wellbeing Health surveys Govt. policy remains stable; funding continues Purpose: Establish NPDC as a replicable rural care model 2,500 elders screened Project M&E reports Community acceptance of screening; internet reliability Outputs 75 health workers trained Monthly Parkinsonism Days held Training reports, A ttendance sheets, C ampaign materials S takeholders cooperate Activities Develop training modules Conduct screenings Training manuals, M onitoring checklists, A wareness reports Trainers available; C ost of medicines affordable Log-frame Analysis Matrix – NPDC Public Health Approach by WHO: https ://www.who.int/publications/i/item/9789240050983 11

12. Schedule Plan (Yearly Table) – Year 1 Year 1 (Months 1–12) Activities Timeline Remarks Community Mobilization (mosques , schools, leaders, campaigns) M1–M12 Ongoing awareness activities Develop Training Modules & Screening Tools (Bangla) M1–M3 Completed in first 3 months Training of Health Workers (Batch 1: 25) M4–M6 Staggered with refreshers Volunteer Cascade Model (peer educators) M4–M12 (train & launch) Peer educators for household visits Advocacy & Policy Engagement M6–M9 (initial contacts) Target: integrate into NCD or elderly programs Monthly Parkinsonism Days (screenings & education) M7–M12 (6 camps) Total ~30 screening days (across project) Community Exercise Groups (pilot 3 groups) M7–M12 Linked with local volunteers Tele-Neurology Consultations (pilot) M7–M12 Linked with district neurologists Caregiver Support Sessions (start sessions) M7–M12 Stress management & Skills training Monitoring & Evaluation (M&E) M2 baseline; M6, M12 reviews Quarterly tracking throughout NPDC Toolkit Development (Draft) M10–M12 For nationwide scaling 12

13. Schedule Plan (Yearly Table ) – Year 2 Year 2 (Months 13–24) Activities Timeline Remarks Community Mobilization M13–M24 Ongoing awareness activities Training of Health Workers (Refresher 25) M16 Staggered with refreshers Volunteer Cascade Model (expand) M13–M24 Peer educators for household visits Advocacy & Policy Engagement (policy briefs) M20–M24 Target: integrate into NCD or elderly programs Monthly Parkinsonism Days (12 camps) M13–M24 Total ~30 screening days (across project) Community Exercise Groups(expand to 5–6) M13–M24 Linked with local volunteers Tele-Neurology Consultations (expansion) M13–M24 Linked with district neurologists Caregiver Support Sessions (monthly) M13–M24 Stress management+ skills training Monitoring & Evaluation (M&E) M18 midline; M24 review Quarterly tracking throughout NPDC Toolkit Development (Pilot & revise) M18–M21 For nationwide scaling 13

14. Schedule Plan (Yearly Table ) – Year 3 Year 3 (Months 25–36) Activities Timeline Remarks Community Mobilization M25–M30 Ongoing awareness activities Training of Health Workers (Refresher 25) M28 Staggered with refreshers Volunteer Cascade Model (Maintain ) M25–M36 Peer educators for household visits Advocacy & Policy Engagement (National dissemination) M30–M36 Target: integrate into NCD or elderly programs Monthly Parkinsonism Days (12 camps) M25–M36 Total ~30 screening days (across project) Community Exercise Groups (scale to 8–10) M25–M33 Linked with local volunteers Tele-Neurology Consultations (full scale) M25–M36 Linked with district neurologists Caregiver Support Sessions (monthly) M25–M36 Stress mgmt + skills training Monitoring & Evaluation (M&E) M30 review; M36 final evaluation Quarterly tracking throughout NPDC Toolkit Development (Finalize & validate) M32–M36 For nationwide scaling 14

15. Schedule Plan (Gantt Chart) 15

16. Timeline Overview (Simplified Gantt Style ) 16

17. NPDC Project Total Budget plan in different category ($100,000 USD) Category Item/Description Cost (USD) Notes 1. Personnel & Human Resources Project Coordinator (full-time, 2 years) 18,000 $750/month × 24 months Field Investigators / Community Health Workers (4 persons × 2 years) 24,000 $250/month × 4 × 24 months Medical Consultants / Specialist Honorarium 6,000 $250/visit × 12 visits/year × 2 years Subtotal Personnel 48,000 2. Training & Capacity Building Training sessions for CHWs and local staff (venues, materials, trainers) 5,000 4 sessions/year × 2 years Training manuals, guidelines, and educational materials 4 ,000 Printed & digital formats Subtotal Training 9 ,000 3. Equipment & Supplies Screening kits (motor function tests, tablets for data collection) 2 ,000 1 kits × $200 each Laptops/tablets for data entry & management 2,500 5 laptops/tablets × $500 each Stationery, printing, PPE for field staff 1 ,000 Subtotal Equipment & Supplies 5,500 4. Field Operations & Community Engagement Transportation (fuel, vehicle hire, field visits) 10,000 Community awareness campaigns & outreach (posters, local media) 4,000 Mobile data & internet for field reporting 2,500 Subtotal Field Operations 16,500 5. Data Management & Analysis Software licenses (SPSS/Stata, GIS mapping, etc.) 5 ,000 Data entry, cleaning, and quality control 3,000 Temporary support staff Data analysis & report preparation 2,500 Consultant fees Subtotal Data 10,500 6. Monitoring, Evaluation & Miscellaneous External monitoring & mid-term evaluation 6 ,000 Contingency / unexpected expenses (5% of total) 4,500 Subtotal M&E & Misc. 10,500 17

18. Category 2025 (USD) 2026 (USD) 2027 (USD) Total (USD) Personnel Costs 18,500 20,500 19,500 58,500 Training & Capacity Building 4,500 3,000 1,500 9,000 Field Operations 6,500 5,500 4,500 16,500 Equipment & Supplies 3,000 1,500 1,000 5,500 Monitoring & Evaluation (M&E) 2,000 2,000 2,000 6,000 Contingency (5%) 1,500 1,500 1,500 4,500 TOTAL 36,000 34,000 30,000 100,000 NPDC Project Yearly Budget Plan (2025–2027) – Total $100,000 USD 18

19. Notes on Total Budget plan ($100,000 USD) Notes / Assumptions: Personnel costs assume local salaries in rural Bangladesh. Field operations include travel to multiple villages for screening and follow-up. Contingency is set at 5%, which is reasonable for community health projects. Training assumes 2-day sessions for field staff and clinical health workers. Equipment assumes tablets, screening tools, and protective gear, gloves etc. Personnel is front-loaded but still significant through all years. Training & Equipment's mainly occurs in 2025–2026. Field operations taper in 2027 as follow-up and reporting dominate. Budget includes provisions for staff turnover and temporary replacements if needed . Assumes stable local prices; minor adjustments may be needed for inflation or currency fluctuations. 19 19

20. Strengths 20

21. Weakness 21

22. Oppertunities 22

23. Threats 23

24. Direct Benefits for People and Communities Early Detection and Intervention Help identify Parkinsonism in its early stages among elderly populations in rural Bangladesh. Facilitate timely treatment and rehabilitation, improving patients' quality of life . 2. Improved Community Awareness Raise awareness about Parkinsonism and differentiate it from normal aging. Reduce stigma associated with neurological disorders in rural communities . 3. Empowerment of Families and Caregivers Educate caregivers on symptom management, reducing caregiver burden. Encourage family involvement in monitoring and supporting elderly patients. 24

25. Strengthening Healthcare and Policy Strengthening Local Healthcare Capacity Policy and Planning Implications Train community health workers and local practitioners in screening and care. Build sustainable, community-based support systems for elderly care. Generate evidence for policymakers to allocate resources and design geriatric health programs. Support integration of neurological care into primary healthcare in rural settings. 25

26. Broader Scientific and Replicable Impact Research and Knowledge Advancement Scalability and Model Replication Offer a replicable model that can be adapted for other neurological or age-related conditions in rural and low-resource areas in Bangladesh. Provide epidemiological data on Parkinsonism prevalence and risk factors in rural Bangladesh. Contribute to scientific literature and guide future studies on neurodegenerative diseases in low-resource settings. 26

27. Conclusion: Paving the Way for Community-Based Parkinsonism Care The NPDC project aims to address the challenges of Parkinsonism in rural Bangladesh by creating a sustainable, community-based model. Key Goals: Early Detection & Care: To reduce disability and improve the quality of life for rural elders. Empowerment: To train health workers, support caregivers, and raise community awareness. Policy & Scalability: To generate evidence for policy and offer a replicable model for other low-resource settings. 27

28. Barikdar, A., Ahmed, T. and Lasker, S.P. (2014). The situation of the elderly in Bangladesh. Bangladesh Journal of Bioethics , 5(1), pp.6–12. BMJ (2024). Cases of Parkinson’s disease set to reach 25 million worldwide by 2050. BMJ , 388:e080952. BMC Neurology (2025). Global burden of Parkinson’s disease: prevalence, incidence and DALYs, 1990–2021. BMC Neurology , 25:191. Frontiers in Public Health (2021). Global trends in the incidence, prevalence, and years lived with disability due to Parkinson’s disease. Frontiers in Public Health , 9:776847. Islam, M.S., Hossain, S., and Rahman, F. (2020). Neurological disorders in Bangladesh: current scenario and future prospects. Bangladesh Medical Research Council Bulletin , 46(2), pp.141–150. Khalil, M. et al. (2019). Challenges in the management of Parkinson’s disease in low- and middle-income countries. Journal of Neurology , 266(4), pp.965–974. Michael J. Fox Foundation (2023). New estimate suggests 25 million people with Parkinson’s by 2050. [online] Available at: https:// www.michaeljfox.org /news/new-estimate-suggests-25-million-people-parkinsons-2050 [Accessed 28 Aug 2025]. UNFPA (2021). World Population Ageing Report . New York: United Nations Population Fund. WHO (2022). Parkinson disease: a public health approach . Geneva: World Health Organization. World Life Expectancy (2020). Parkinson’s Disease in Bangladesh. [online] Available at: https:// www.worldlifeexpectancy.com / bangladesh - parkinson -disease [Accessed 28 Aug 2025]. Zarit, S.H., Reever, K.E. and Bach-Peterson, J. (1980). Relatives of the impaired elderly: correlates of feelings of burden. The Gerontologist , 20(6), pp.649–655 . https://www.who.int/publications/i/item/9789240050983 REFERENCE … 28

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